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So some of you know I have APS, and do treatments of "rituximab" and they wanted to change it to "cyclophosphamide" a way worse drug cause of the "rituximab" failing and me having over 8 diff infusions in a year in a half.. On top of me having the couching up blood and clot episode, Well cyc will be off the table cause that would do more damage then helping me... cause they cant figure out the main cause an reason to this blood couching episodes they wanna go about something called "ivig" aka "gamma" they feel I am getting sick, tho being on that treatment kills my immune system and I am on pills and others to make up for it. They feel "ivig" would be the right step as its thousands of antibodies that would be given to me and part that sucks, would be every month for few hours... for the rest of my life. This APS autoimmune disease sucks it truly does.
So in the end, health is not improveing, just slow and slowly getting worse and worse as time goes on, What's crazy is the Canada fires and how bad Ontario/Hamilton is now as well with the smoke and smell on top of us having this black soot problem, You can imagine how bad this is for me dealing with this is sucks alot.. to any canucks here and who dealing with this also.. PLZ PLZ PLZ be safe, wear mask.. wash and shower after getting in just being out for a few hours will do damage if not cleaned after.
Some of you have asked as well, about other things needed and such.. for my health, So it was a fight to get some flu shots, shingles and others,, and now my main doctors want me to get RSV shot, this is not free and such a damn fight to get it covered cause Im not a baby and not 60 years old, but because my lungs are in such bad shape and the aps treatments killing immune system they want me to get this as a extra layer of protection.. So being on ODSP i am fighting to get special coverage as just cant cop this cost for it.. with how things are currently... and sadly any help/tips goes to feeding/rent/bying things we need and ya...
So am going to try diff departments to try and get it covered, if not have to try and reach out to Pfizer to see if they will cover the 300$ cost of this (an if it happens to be needed again which for most people over 60 a second shot might not be needed) for me this is a truly unknown so ya this sucks as well... Sorry for the run on sentences and the spelling, part of my LD and cant help it gamers..
Wish i was just able to win the lottery without buying it (i know its stupid) be nice to just have money to cover cost for this, or for me to get medical records from doc, for when i try and file for DTC, and then to even cover her charging me for getting her to fill out her doctor part of that as well... So many things that should be free and not end up costing someone 500/1000/ or more to do to be able to support them self, family and more is just so stupid to me but instead gov just wants to keep you locked in a poor and broken state.
Thanks for reading this all, if you do some of you have asked via poll/feedback/and even report issues on how i am crazy to see that gamers, so here it is.. Taking it day by day and just trying to keep strong and not give up, cause if i gave up now.. just letting my girls down and my life would be cut so short but man its a damn battle gamers... Anways I hope randy starts posting more keys as well sorry there is a hour late post sometimes gamers..
Eh gamers, I am sorry... but I Don't Know What To DO.
I want to be completely honest with you all. Lately, with the dropping views, the lack of feedback, and the overall silence, I’ve been asking myself: why should I keep going? I know the game still has plenty of people playing, and I know many of you still love getting these keys, but I guess Reddit is still the main spot everyone goes to. I didn't want to give up on this site, but it is hard to find the strength to keep pushing when everything just feels blank on this end.
I also want to sincerely apologize for my previous posts about my health. Things have been getting worse lately—between my APS, my other medical issues, and having the blood clot in my left lung, the situation is no joke. I’m sorry for even bringing it up or venting about it. Honestly, I’ve been worried that maybe my venting just pushed you guys away, and I should have just shut the fuck up and kept it to myself. I don't really know anymore. I am sorry.
I genuinely loved doing this to help you guys. Seeing that over 50+ of you signed up for the email notifications once a code is posted really meant a lot to me. And please know, this was never about making money. But the truth is, support has completely stalled. It’s been weeks since anyone has sent even a couple of dollars. Again, it's not about the money itself, but those small gestures gave me a reason and the drive to keep this site updated despite the pain. Unlike other sites, I didn't want to load this place with invasive ads, charge you for tracker features, or hide things behind a Patreon. I wanted to keep it pure for the community.
Thanks for reading.
From SMASH, The APS Disability Dad Gamer.